The National Marfan Foundation is a non-profit voluntary health organization dedicated to saving lives and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders.

The Foundation, which was founded in 1981, accomplishes these goals by:

• Educating patients, family members and the health care community about the syndrome.
• Advocating and funding clinical and molecular research into the syndrome's detection and treatment.
• Providing national support services and a network of local and special interest support groups for patients and relatives to share experiences and improve their medical care.

The NMF works to achieve its mission through a comprehensive resource center that includes a toll-free number and personalized email/phone communication; an annual conference for affected people, their families and health care providers; informative publications targeted to both the public and medical community; a coast-to-coast support network; national and international scientific symposia; public awareness campaigns; medical education initiatives at hospitals and national professional meetings; and an aggressive research program that funds meritorious projects in basic, clinical and translational research.

Visit their Education and Awareness, Support Services and Research links for more detailed information on specific program initiatives.

Content on this page provided by the National Marfan Foundation